Aug
23
Tuesday, August 23, 2016

Last Day Send Off to St. Jude

By · Comments (0)

14086273_876481319062_5116694737926775463_oWhat a sweet surprise! We left at 5:45 am yesterday morning (August 22, 2014) for Noah’s last long day of treatment. And to our surprise our friends were up the road, ready to cheer us on! It was a great send off! A great way to start the last day after being diagnosed on January 2014.  Here is my video and my friend’s video.

 

Categories : Uncategorized
Comments (0)
Aug
16
Tuesday, August 16, 2016

Olympics 2016

By · Comments (0)

13668887_867969511792_189287911260381193_o

Greater Than Gold by David Boudia (with Tim Ellsworth)

 

Cancer, Rio & hope

 

Diving duo wins silver, gives credit to Christ

Schrimsher grateful for father’s legacy

 

U.S. diver abandons chase of fame, pursues Christ

 

Wrestler Helen Maroulis content with God’s plan

 

Dietzen’s love for teammates anchored by faith

 

Nightly prayers keep skeet shooter’s focus on God

 

U.S. swimmer Simone Manuel gives ‘all glory to God’

 

Triple jumper ready for big leap

 

Swimmer wins gold, shares source of happiness

 

‘Thy will be done’ is shooter’s prayer

 

Team USA flag bearer Phelps’ rehab ‘Purpose-Driven’

 

U.S. volleyball player seeks God amid trials

Categories : Uncategorized
Comments (0)
Aug
16
Tuesday, August 16, 2016

Team Noah: Together We Wait

By · Comments (0)

Our friend, Ginger, and her kids went with us to St. Jude a few weeks ago. She decided to write a story about us for Our Jackson Home, and how the Jackson community has encouraged us through our long, difficult journey. You can read it here.

Categories : Uncategorized
Comments (0)
Aug
08
Monday, August 8, 2016

20 days! 20 days of chemo!

By · Comments (0)

13876599_10154440200054169_1614935966893411466_nHe was counting his weeks left of chemo on his fingers and toes, now he can count the days! 20 days from today will be his last dose of nightly chemo at home! (He will have a week of nightly chemo following August 22nd, his last chemo in his port at St. Jude.)

Categories : Uncategorized
Comments (0)
Aug
08
Monday, August 8, 2016

Cancer, Rio and Hope

By · Comments (0)

48016Tim wrote about what our family has gone through between the time of the Olympics.

Categories : Uncategorized
Comments (0)
May
25
Wednesday, May 25, 2016

Dr. Sandlund and Noah’s trick

By · Comments (0)

13344711_10154248171869169_2783583230265253882_nNoah’s favorite part of his neuro exam – His doctor added a funny trick to the end where he taps Noah’s forehead, and then Noah sticks his tongue out. They laugh every time. :) (Week 108. Counts are 1000 = perfect for him!)

Categories : Uncategorized
Comments (0)
May
10
Tuesday, May 10, 2016

Bringing Noah the Moon

By · Comments (0)

A Union University student, Danica Smithwick, wrote a great piece about our family and St. Jude Children’s Research Hospital. You can read it here.

Categories : Uncategorized
Comments (0)
Apr
15
Friday, April 15, 2016

So long steroids and vincristine, we won’t miss you!

By · Comments (0)

 

Steroid and vincristine week adds more pills to Noah’s normal week. And this is Noah’s last steroid week! We are SO excited! It doesn’t mean the weeks left are going to be smooth sailing. In fact, he’s a little sad to finish dex because he actually has an appetite during steroid week that he doesn’t have the other weeks. But, we are excited that this is one huge step in finishing his treatment!

Here’s the breakdown  ;)
Once a month he takes steroids (Dexamethasone) and at the same time he gets a chemo named Vincristine at St. Jude. This particular chemo causes Noah to have back pain and leg pain. So, during the same week he takes steroid pills, he also takes pills for the nerve pain (Gabapentin and actually he has to take the nerve pain medicine for 10 days).

Noah’s regular weekly medicine consists of Septra to help him fight off things like pneumonia, Kytril and Zantac to help with the nausea, and chemo pills at night. For these medicines, he swallows a total of 61 pills each week (some have to be cut in half because of the pill size). During the time of steroids and Vincristine, he adds to his normal pills, an extra 75 pills in a 10 period. That’s a whole lot of pills! It averages to about 15 pills a day, and that doesn’t even include any extra meds he might need: such as Morphine, Benedryl and Phenergan.

We are very thankful to have these medicines that help save Noah’s life and that they can also help make him more comfortable. Lord willing, after this month he will never need to take those extra 75 pills again. We are so blessed!

12977001_10154130797034169_8999506175079368075_o

Categories : Uncategorized
Comments (0)
Apr
10
Sunday, April 10, 2016

Week 100! 20 more weeks to go!

By · Comments (0)

 

12592613_10154109845474169_5597722941236514116_n20160410_205158

Categories : Uncategorized
Comments (0)
Mar
28
Monday, March 28, 2016

We are in this thing together…

By · Comments (0)

20160328_133319After visiting friends on the second floor, I looked down and saw this. Mondays at St. Jude consists of a lot of waiting. I am so thankful we can do this together, even if it is just waiting.

Categories : Uncategorized
Comments (0)