Jan
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Monday, January 20, 2014

Jan. 20 update

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IMG_20140120_212933Today was somewhat of a mixed bag for Noah. He had a good night last night, an OK morning and a rough afternoon. His head, stomach and legs all hurt, and it was clear that he was pretty miserable. But after a late afternoon napped, Noah rallied considerably. He played with Daniel and Emmalee for a while and was laughing and cheerful when I left the hospital to come back home for the night. A little later, he felt well enough to walk down the hall to do some crafts with volunteers who came to work with the kids (that’s what he’s doing in the picture).

He also ate well tonight for the first time in a long, long time. We’re hoping he keeps it down, especially since he has an MRI scheduled for noon tomorrow and can’t have anything to eat or drink after midnight tonight.

We’re expecting to be discharged in the next day or so as long as the MRI comes back OK.

Some specific prayer requests:

1. Pray that Noah is able to keep his food down tonight, and that he won’t get overly hungry before his MRI tomorrow.

2. Pray that his MRI shows that the fluid sac previously around his spine has healed, and that Noah will be well enough to be discharged soon. Tonight will be the 11th night for him to be in the hospital, and I think getting out should lift his spirits.

3. You can start praying now for the bone marrow test that Noah will have on day 15 of his treatment. This is a huge deal. Huge. We need the MRD (minimal residual disease) from this test to come back negative. This is the first indicator of how well Noah is responding to the chemo. Less than 1 percent is desirable, but we’re praying for less than .01 percent. Anything at less than 1 percent will keep Noah in the low-risk group, and that obviously would make us feel a lot better.

Many, many thanks for your continued prayers.

Categories : Family, Leukemia, Noah

Comments

  1. Todd Taylor says:

    Lifting Noah up in prayer.

  2. Barbara Perry says:

    Thanks so much for the update. Praying, praying and praying. Love you guys!! Mimi

  3. Justin Phillips says:

    Tim. Praying for you and your family and am wish there was more that I could do.

  4. Nancy Kruschwitz says:

    Trusting that your requests will be granted.
    Praying that Noah will feel God’s presence and power
    as he goes through these days of testing and
    for your family to also know the presence of or
    Awesome God!

  5. Carla Sanderson says:

    Knowing exactly what to pray for is a tremendous help. On my knees for Noah. Thank you.

  6. Susan Hopper says:

    Praying for you all Tim. Lifting up Noah throughout the day.

  7. Glenda and Wayne Stewart says:

    Continuing to pray for Noah and family. We are aware that this is hard on parents, grandparents and family and friends, watching a child having to go through such trials. Keep strong in your faith and God will see you all through this. Praying that Noah will soon be out of pain and able to eat and play with others. Thank you for the updates and please keep them coming. God’s blessing upon all.

  8. Judy K Smoot says:

    Ellsworth Family,
    Praying for you.My entire church family is also praying.
    Some of my own family members have been where you are
    and St Jude is a wonderful place, but we are trusting the
    GREAT physician. Lean on Him. He is always there and waiting
    for you to ask. Your family is SPECIAL to me.

  9. Melanie Rickman says:

    Yes, I am praying for those specific needs. Keep letting us know what specifically to ask for when we pray.

  10. Tommy says:

    Hey Tim; this is Sarah’s uncle. Since I don’t use facebook I found your web site so I can follow this way. Margaret and I are praying every day for Noah to be healed. We have contacted several friends to add the family to their church prayer list here in Henderson, Providence, Clay and will continue to tell others. I’m confident God will heal Noah. We’ll continue to follow this site with occasional calls to brother David. This will help lightened the load on Mary Lou. our prayers are with you.

  11. Praying for you guys!

  12. Sandy & Larry Phipps says:

    Keeping Noah in our daily prayers as well as your family. Have put all of you on several churches prayer list and several strong prayer warriors as well. Stay strong in the Lord. We learn the strength of the Anchor when we are in the midst of the storm.

  13. Stacy Shaw (Cremeens) says:

    Praying daily and nightly for you all. We are here to support you all in anyway.

  14. Uncle Bill says:

    Tim, Sarah, Daniel, and Emmalee,

    Donna, Shana, and I were really saddened to hear about Noah’s condition. We continue to pray for him. Thanks for providing this site where we can follow Noah’s progress. From all the comments posted here, you are receiving lots of support. Just know that we are thinking of you and praying for you all. God bless.

  15. Krista says:

    Praying daily with my Noah that yours would be comfortable and healed.

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