Jan
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Wednesday, January 29, 2014

Jan. 29 update and prayer requests

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DSC_0368Not a whole lot to report so far this week. Noah has felt well for the most part. He was originally scheduled for an MRI tomorrow as a follow-up to the leg pain he had after his last spinal tap, but they decided to cancel it, which was fine with us. He doesn’t seem to be having any more problems with that.

The next big day for him is Friday, when he will have a spinal tap and a bone marrow test that will be our first indication of how he is responding to the treatment.

Some specific prayer requests:

1. Pray that his MRD on Friday would come back at less than 1 percent, which will keep him in the low-risk group. Please pray also for a quick recovery from these procedures on Friday.

2. Pray for Noah’s attitude. He’s getting to where he doesn’t like going to St. Jude and doesn’t understand why he has to have all of these things done to him when he feels fine. Pray that the Lord would give him a peace and a settled mind about this lengthy process, that he would understand as much as he is capable of understanding, and that Sarah and I will be able to clearly communicate to him about all of this.

3. Pray for him about food and smells. The treatment does some weird things to his tastes and nose. Sometimes certain smells make him very nauseous, and we never know what those are going to be. He’s on a low bacteria diet, which means it’s sometimes complicated to prepare food for him. Sometimes he can’t have the food he wants, and sometimes there’s just not much that sounds good to him. He also can’t eat any restaurant food during this first phase of his treatment, which makes it hard when he’s craving McDonald’s.

4. He had a bit of a runny nose today. Pray that this goes away and that it’s not the start of some more serious sickness. With his blood levels as low as they are, even a cold or low fever could put him back in the hospital for a couple of days.

5. Pray for his blood sugar. His readings have been high the last two nights, and we need to find a way to keep that under control. This problem is compounded given Noah’s issues with food.

We’ve been so encouraged by all the cards, emails, messages, texts and phone calls. Sometimes I feel like I’m prayed out and that I just can’t pray any more. It’s a blessing to know that so many others are standing in the gap for us, lifting Noah to the Lord when we feel like we can’t say anything else. We are deeply grateful.

 

Categories : Family, Leukemia, Noah

Comments

  1. Sarah Wanck says:

    Standing in intercession for you.
    When you are weak, the Body is strong for you. As is the Lord.
    Praying all these things and more.

  2. Todd Taylor says:

    Lifting Noah up in prayers. Praying for you as well.

  3. Sarah Collum says:

    You guys are on my daily prayer list. Thanks for the updates.

  4. Joy Zbinden says:

    Thank you for the updates and we continue to pray for the entire family!

  5. Melanie Rickman says:

    Praying earnestly for all of you. Praying for these specific prayer request.

  6. Nora and Richard Browning says:

    Thanks for the update, always in our prayers…XO

  7. Joanna Moore says:

    We are praying for Noah and The Ellsworth family. Also, the Englewood choir family prays for you regularly. The Myatts have been good to keep us updated so we can pray specifically for your requests.

  8. Anna Marie Giacone says:

    I pray for you and your family every day.

  9. Barbara Perry says:

    Praying for you all and sending much love. Has the address changed since you are not at st Jude all the time

  10. Tim E. says:

    Thanks to all for the prayers. Barbara, the St. Jude address is still good. We go by every day to check his mail while we’re there.

  11. Sandy Phipps says:

    Understanding your problems as Scott went through the high sugar and had to have hid fingers poked every morning to see if it was high finally put him on insulin temporarily. They will also watch his kidneys as they can have problems as well from the chemo. He went on dialysis for 2-3 weeks. Praying for Noah that all will be well with tests results and he can
    soon go to MacDonald’s like me!

  12. Ranelle says:

    Praying, praying, praying for tomorrow’s test.

  13. Pam says:

    Prayers being lifted daily. God Bless you all.

  14. Jeanita & Merv Spillman says:

    Tim & Sarah & children., We are deeply concerned &,praying for healing results for little Noah. Children
    Seem to be very resilant . Meaning they do much better than grownups do through these horrendous conditions., we can’t imagine what it’s like in your shoes. But we just want you to know how much we
    Care for each of you. We believe God has a special life in store for Noah & that he will be well! Our best prayers,, thoughts,, and Love for your family.

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