Apr
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Wednesday, April 16, 2014

This weekend: Surgery and final methotrexate treatment

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teamnoahTomorrow Noah will head back to St. Jude for the weekend for a couple of different things:

1. His final high-dose methotrexate treatment. After a rough start with the first one, the last two treatments have gone perfectly. Please pray that this one will go smoothly as well, that he’ll clear the chemo quickly and that he’ll get to come home on Sunday.

2. His port installation. Upon Noah’s leukemia diagnosis in January, he underwent surgery to install a central line in his chest. That line is how the chemo has been administered since then. It’s high maintenance, requiring a dressing change three times a week and a daily flushing. He also can’t get the dressing wet, which makes baths difficult. On Friday morning, Noah will undergo a procedure to remove the central line and add a port instead. The port will go under his skin, and the remainder of his chemo treatments will be administered by accessing the port with a needle. It will be much easier to care for and should be much more comfortable for Noah going forward.

However, it’s a significant change for him, and he’s understandably nervous about it. For a long time he insisted that he wanted to keep his line and not get a port, but that’s just not a viable option for the next two years. So, we bribed him by offering him a new bike. That did the trick. He has a much better attitude now about getting the port, even if he is still concerned about it. His bike came yesterday, and I’ll have it assembled and ready for him when he gets home from the hospital. Please pray that Noah won’t be scared about the port and that he’ll get used to it quickly.

Noah will spend Thursday at the hospital doing routine stuff in advance of his surgery on Friday. He’ll go in first-thing on Friday morning for his procedure and then should be admitted later in the day for the rest of the weekend.

Thankfully, this is the last time during his entire treatment regimen that Noah is schedule to be inpatient at the hospital. If he gets a fever sometime we’ll have to take him in, so we expect that there will most likely be some short inpatient stays still to come, but it’s encouraging to know that this is the last one that is scheduled. From here on out, ¬†assuming that all goes as expected, everything will be done on an outpatient basis.

If you’d keep Noah’s health in your prayers going forward, we’d appreciate it. We take for granted things like fevers in our kids. Kids get sick. They get fevers. They’re typically over them in a couple of days, and we move on with life. It won’t be that simple for us if Noah gets sick. If he gets a fever, we’re most likely looking at a hospital stay of at least a couple of days, which is a major pain. So please pray regularly that Noah will stay fever-free.

Last night I was reading back over some of the tweets that had been sent to me in mid-January when we took Noah to St. Jude and when his diagnosis was confirmed. In a lot of ways, that seems like a lifetime ago. I was greatly moved to read how many people were praying for us at that time, and I was reminded of how many people have been so faithful in praying for us since then. Thank you. Our journey with Noah is far from over. We’ve still got another two years to go. The Lord has been faithful thus far, and we know his faithfulness will continue.

Categories : Family, Leukemia, Noah

Comments

  1. Anna Clifford says:

    Praying, now.
    Thanks for for sharing.
    Hugs to all, Anna

  2. Allen and Janice Crawford says:

    We are praying for all of you. God is good and He will take care of your every need. Hang in there Noah! You have alot of people praying for you!

    Allen & Janice Crawford and family

  3. Nadine Dunivan says:

    Think about your family every day and pray for you all.

  4. Nadine Dunivan says:

    Think about your family every day and will keep praying for you all.

  5. Sandy Phipps says:

    Amazing ride you have all been on and yet it is not over yet. The port will be so great once he gets over the fear of having the surgery. It is a little scary to know that he will be put to sleep and have something foreign put under his skin but the first time he gets his treatment he will realy appreciate it as well as his bathing and all will be a breeze. Not to mention he will be able to go swimming when the weather gets warmer. I know he will miss playing ball so he will have to yell all the louding for his team and be the team mascot instead. I am sure they will appreciate that for them. Best wishes for all of your family and we will keep you in our prayers.

  6. Melanie Rickman says:

    Still praying and will continue.

  7. Mitch Bennett says:

    Thanks again for the update. We will continue to pray. I also pray for continued patience and energy for you all.

  8. Rodney Galles says:

    Sylvia:

    I am praying daily for Noah, and have also been paying for intervention of Father Michael McGivney, founder of the Knights of Columbus, to request God to grant the gift of healing for Noah. Every time i start to pray, Noah comes to mind and I add him in the prayer.

    May God grant you serenity and peace as you and your family work through this terrible disease.

    Rodney Galles

  9. Pat Garrison says:

    Prayers continuing to come your way from Branson!! So thankful for Noah’s progress – what a cute little man and a very brave one! We have a 6 year old boy in our church that finished 3 years of treatment about 6 months ago; he’s in school and happy as can be! God is good!!! Hang in there Noah! If you want their family’s info for contact let me know!!

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