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Feb
19
Friday, February 19, 2016

Steroids are hard on mom too!

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20160219_112337DESPERATE TIMES CALL FOR DESPERATE MEASURES.

For the 4th day in a row, Noah has sent me to Target for their popcorn. Today he actually wanted popcorn, a soft pretzel AND an Icee. Yes, we are in full force of steroid week.

Along with the mood swings and emotions steroid week can bring, it also brings strong food cravings. And since my chemo patient son has a hard time finding food to eat the other 20 days of the month, steroid week gives him a chance to enjoy food and gain some much needed calories. It normally brings a lot more work on me, but I’m happy to see him eat.

Some steroid week cravings have been pepperoni, sometimes mashed potatoes, sometimes bacon, and this week seems to be popcorn (with a little bacon on the side. 🙂 ) He is SO picky and when he wants something, what he really means is he wanted it 10 minutes ago.

So you can understand how I was almost in tears when I got to Target and discovered their snack area was closed due to plumbing problems. Doesn’t Target know how huge this is for us??? We need their food and we need it now! I talked to Noah, and after he asked how close the next Target was, 🙂 I offered a few suggestions that he thought he might be able to “try.”

Now I am keeping my fingers crossed that he will like it. And thanking God for the bank that normally gives suckers to the kids, but today they just “happened” to have popcorn instead.

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Jan
25
Monday, January 25, 2016

30 more weeks buddy

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20160125_170417Even though this has happened a lot over the past 2 years, in fact too many to count, it is still something I can’t get used to seeing. But I am thankful it doesn’t happen as often as it used to.

Just 30 more weeks, Noah. We are almost done. YOU are almost done! Praying for your complete healing, where cancer will stay away forever and that you will have no lasting side effects from these terrible, life saving drugs.

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Jan
13
Wednesday, January 13, 2016

Cancer diagnosis anniversary 2016

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DSC_4770Today I said words like, “Noah, leave your sister alone!” and “Noah, settle down!” Words that on today’s occasion, warmed my heart.

We celebrated Noah’s 2 year cancer diagnosis anniversary at Maggie Moo’s tonight. We talked about what we remembered in those early days and how far we have come since then.

We dreamed about what his end of treatment party might look like. We have lots of fun planning to do in the days ahead! And, we are thinking about Disney World in the fall with no medicines and no restrictions since his port will be out. We are excited and have started watching Disney movies again to anticipate the trip and so we can be ready when we see a character in the park. 😉 It feels so good to dream.

We talked about the blessings that have come through Noah’s diagnosis. The kids mentioned several of their friends from St. Jude, Noah mentioned his doctor and free Putt Putt golf. I am so thankful that they can see the blessings through the hardships.

There are lots to look forward to in 2016. And we pray for no hurdles to go over along the way!

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Dec
06
Sunday, December 6, 2015

The Race

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Noah had several runners running for him this year in the St. Jude Marathon! It was so sweet to see friends and family (some who aren’t even pictured here), running in their Team Noah shirts. We feel so encouraged and loved by the time and money they have put into training and for many of their family that came to cheer them on!

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Nov
30
Monday, November 30, 2015

We’ll try anything to get him to eat

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Recently, Noah hasn’t been eating on Mondays. We think it’s more nerves than anything, but by the end of the day he’s pretty lethargic. He might eat something before we leave, but that’s it. Sometimes that has meant not eating or drinking from 8:30 am to 7 pm. We have tried
everything we can think of. We have taken food, we have ordered food, we let him have a milkshake or something out of the vending machine, ANYTHING! But today we are going to try something new. I have made a sticker chart for his eating and drinking. I’m praying this helps to get him over this slump. (Of course it has been steroid week, so that should help today. 🙂 )

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Nov
07
Saturday, November 7, 2015

Cider Stand to raise money for St. Jude!

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We raised $500 for St. Jude Children’s Research Hospital. 20151107_131513

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Oct
31
Saturday, October 31, 2015

Halloween. What a sweet reminder of normalcy.

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DSC_3472If you look hard in this picture, not only will you see Waldo, but you will see iv pumps and wheel chairs, you might even see the back of a boys head that has been shaved from brain surgery.

St. Jude does such a great job trying to lift the spirit of the patients and their family. They have art time and movie time in the lobby, they allow companies to come in and bring donations. But their trick or treating party is the biggest event that the hospital puts on each year. Each department makes a booth and gives out handfuls AND handfuls of candy.

St. Jude knows that for their patients, a little sugar pales in comparison to what the kids are facing. They know that for some kids, they can’t get out and go trick or treating like their friends or siblings can because they may be attached to a iv pump, or they might have low counts. They know that this might be even be the child’s last Halloween. They also know that for this one day the kids that look different; the ones with scars on their heads, with no hair, or only a few strands of hair, the ones whose eyes look different or the ones that need crutches or wheelchairs, for this ONE day, these kids can look like normal kids and hopefully feel normal.

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Oct
19
Monday, October 19, 2015

Flat Noah travels the world

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Some friends took Flat Noah on a trip to Italy. He had such a good time, he decided to stay and travel the country side. (He slipped out of the window on the train. 🙂 )12095184_10208009099568215_7836868871557092750_o

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Aug
22
Saturday, August 22, 2015

One Year From Today We Will Celebrate!

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We are celebrating today! One year from today, Noah will receive his last chemo at St. Jude! One. year. Wow!

We wanted to document our weekly Monday visit, and thought we would share it with you. This is what a normal appointment day looks like. Of course, there are weeks that sometimes involve other things like, procedures or nasal washes.

While our ultimate hope is in something greater, Jesus’s saving grace. We are also thankful God has given us St. Jude Children’s Research Hospital, that gives us much hope in the healing of our son and many others kids.

Categories : Family, Leukemia, Noah
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Jul
16
Thursday, July 16, 2015

Another Team Noah t-shirt order

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I can’t believe it, but we are going to do another Team Noah t-shirt order! Last year, all proceeds went to Habitat for Hope, a place we lived at a couple months during Noah’s first part of treatment. This year, all proceeds will go to St. Jude!
Shirts Youth XSmall – Adult XLarge is $10, 2XL-3XL are $12.50, 4XL-5XL are $15.00. If we need to mail them, we will notify you on the cost for shipping and handling. Deadline for orders are Friday, July 24th. Follow this linkTeamNoahShirtB_web to order!

Categories : Leukemia, Noah
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